Poor Harlow just can't catch a break...
When we removed the EEG electrodes from her head on Sunday we realized they had burned her. We saw a dermatologist today, 4 days later then we should have so they have had time to do some healing and the best we can get is that they hope they wont scar. We will handle this situation however we see fit depending on the actions and response we get from the company that does the equipment and the testing.
Thursday, June 14, 2012
Saturday, June 9, 2012
This is Harlow 6/8/2012. She is doing another EEG test but at home this time. We went to the neurologist on Monday and they let us know they think she needs to start medication. Chris and I feel that we are not ready to have her start any medication to prevent seizures yet. We feel that she is just too young still. The drawback to this is that if her seizures continue and get worse it can affect her development. So we and the neurologist decided to do some more testing before we make a decision on treatment. The medication they want to try is called Carbatrol. She would take it 3 times a day as long as its working. After a year of being seizure free the Dr would take her off of it and re-evaluate her. So that's where we are for now. She finishes her 72 hours of EEG tomorrow afternoon and I will update after we meet with the neurologist and get the results from this round. I must say its actually pretty comical what people will say to you out in public when you have a child with their head all wrapped up and wires coming out. Thanks again for all your support and help!
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